#JusticeForLB launches Private Members Bill Campaign for a UK bill to help people remain at home with support rather than end up in institutions:
From http://lbbill.wordpress.com/

Connor was a young man. He needed extra help.Connor was moved to an Assessment and Treatment Unit.Connor died there. He was not sick.We must stop this happening to other people.
Connor’s mum called Connor ‘Laughing Boy’, or LB.There is a big campaign called #JusticeforLB.
The law did not help Connor.So we need to change the law.Parliament have to vote to change the law.An MP can ask Parliament to change the law.This is called a Private Members Bill.
We want to write a Private Members Bill.For now we are calling it #LBBill.This is in memory of Connor and all the other people who die for no reason.
A dad called Mark took his local council to court. He wanted his son to be able to live at home.Mark said “if you want to stop someone living at home, you must go to court. You must prove why the person cannot live at home”.
We think that sounds a good idea.We think it will stop people dying like Connor died.We want it to be the law.We want the law to keep people close to home.We want people to get the support they need where they live.
Every year, a few MPs have their names picked from a hat.These MPs can tell Parliament about a new law they want.If other people like their idea, there is a chance it can become a new law.
So:We want the law to changeWe need to agree what to put in the lawThen we need to get MPs to support us
Everyone will need to ask their MP to support #LBBill.It may not work. But we have to try.
This post was written by Steve Broach and Anne Collis.
Image from Graphics on the Go fb page

#JusticeForLB launches Private Members Bill Campaign for a UK bill to help people remain at home with support rather than end up in institutions:

From http://lbbill.wordpress.com/

Connor was a young man. He needed extra help.
Connor was moved to an Assessment and Treatment Unit.
Connor died there. He was not sick.
We must stop this happening to other people.

Connor’s mum called Connor ‘Laughing Boy’, or LB.
There is a big campaign called #JusticeforLB.

The law did not help Connor.
So we need to change the law.
Parliament have to vote to change the law.
An MP can ask Parliament to change the law.
This is called a Private Members Bill.

We want to write a Private Members Bill.
For now we are calling it #LBBill.
This is in memory of Connor and all the other people who die for no reason.

A dad called Mark took his local council to court. He wanted his son to be able to live at home.
Mark said “if you want to stop someone living at home, you must go to court. You must prove why the person cannot live at home”.

We think that sounds a good idea.
We think it will stop people dying like Connor died.
We want it to be the law.
We want the law to keep people close to home.
We want people to get the support they need where they live.

Every year, a few MPs have their names picked from a hat.
These MPs can tell Parliament about a new law they want.
If other people like their idea, there is a chance it can become a new law.

So:
We want the law to change
We need to agree what to put in the law
Then we need to get MPs to support us

Everyone will need to ask their MP to support #LBBill.
It may not work. But we have to try.

This post was written by Steve Broach and Anne Collis.

Image from Graphics on the Go fb page

I have trouble using my hands. It is easier for me to type and use my phone than hand write or use the computer. I want to be able to write posts and other things on my phone. Are there any good apps that you would recommend- either voice ones or ones that make it easier to type- for the iPhone? Thanks! By the way, I love the idea for this blog!

spooniegoestocollege

awesomeassistivetechnology:

I have hand troubles, too, so I totally understand the problem!  I personally use an Android device, but there are lots of cross-platform apps out there.  Here are some things to look into/try:

  • Nuance has a (free) dictation app for iphone, but it seems to get mixed reviews for usefulness: https://itunes.apple.com/us/app/dragon-dictation/id341446764?mt=8  (I like it on Android, but the app is clearly different.)
  • Dasher (which I wrote about here) is available for iPhone.  There are lots of input modes to choose from including dragging a finger along the screen, tilting your device, and several based on tapping the screen.  If you download it, be sure to check out the config options, as there are lots of choices to try. Info here: http://www.inference.phy.cam.ac.uk/dasher/MobileDasher.html  (Download for free from app store.)
  • iOS natively supports typing shortcuts.  Basically you assign a short sequence to a longer commonly used phrase.  For example, you could assign ‘crp’ to the phrase ‘chronic pain.’  Whenever you type ‘crp’ the phone will automatically replace it with ‘chronic pain.’  Here’s a tutorial with screenshots of how to set it up: http://www.wikihow.com/Create-Custom-Typing-Shortcuts-in-iOS
  • There are LOTS of alternative keyboard options.  Some just improve accuracy and text prediction; others are radically different approaches to typing.  Some basic enhanced keyboards are Fleksy and SwiftKey (in the form of a note-taking app).  Some more non-traditional options include MessagEase and FlickKey. (I have no personal experience with these options, though I did just install MessagEase on my Android phone…)  Depending on exactly what your challenges are (pain? precision finger control? tapping vs swiping? etc.) , some of these might be great, and others could be terrible.  All I can recommend is to try different things and see what works for you!
  • Some people really like using a stand of some sort when typing on a mobile phone.  I sometimes use my Levo book stand with the ebook attachment for my phone (post about it on my main blog).  There are lots of different options here, from pillows to tabletop stands to DIY solutions.  (I know, not a app, but I thought it was worth mentioning.)

Hope something here is helpful!  I’ll keep my eyes open for other useful phone writing apps and keyboards, and anything interesting will be posted to the blog. 

Thanks for the question and I’m glad you like my blog idea!  (I really enjoyed answering the question.  It was an opportunity to explore new things, think about the things I already know in different ways, and hopefully be helpful!  Everyone should  feel free to send in practical AT questions like this!)

Great news that Google has bought Lift Labs a tech company that makes an ‘assisted living’ product.

The Lift Labs device is a fork or spoon created to reduce tremor, by stabilising using internal mechanics to keep it steady. With Google behind it will have a big opportunities for reaching people worldwide and further development. NY Times has speculated that Google may have been interested because Sergey Brin’s mother has Parkinson’s disease and he has a genetic predisposition of developing it.

From NY Times:

Lift Labs’ founder and a handful of employees will join Google and work out of the company’s Mountain View headquarters.

Most people take eating for granted, but for the 11 million Americans with either essential tremor or Parkinson’s disease, the act of lifting a utensil can be harrowing, embarrassing and messy.

Lift Labs’ Liftware device – basically a vibrating spoon/fork that makes eating easier by counteracting the tremors with a bunch of little swivels – tries to ameliorate the condition.

“A lot of social interaction revolves around eating,” said Dr. Kelvin Chou, a neurology professor at the University of Michigan who has collaborated with Lift Labs. “It’s embarrassing for them, and they feel like people are watching them all the time. I’ve had patients say ‘Someone came up to me and said I should stop drinking.’ Things like that.”

To read more click here 

People with tremor might also want to check out the handsteady cup. 

Woo-hoo, I’ve just got mine. It is awesome. UK peeps can now buy Megg and Mogg full volume Megahex.
»
"Megg is a depressed, drug-addicted witch. Mogg is her black cat. Their friend, Owl, is an anthropomorphised owl. They hang out a lot with Werewolf Jones. These characters struggle unsuccessfully to come to grips with their depression, drug use, sexuality, poverty, lack of work, lack of ambition and their complex feelings about each other in ways that have made Megg and Mogg sensations on Hanselmann’s Girl-Mountain Tumblr. Features all of the "classic" Megg and Mogg episodes from the past five years as well as over 70 pages of all-new material.

Woo-hoo, I’ve just got mine. It is awesome. UK peeps can now buy Megg and Mogg full volume Megahex.

»

"Megg is a depressed, drug-addicted witch. Mogg is her black cat. Their friend, Owl, is an anthropomorphised owl. They hang out a lot with Werewolf Jones. These characters struggle unsuccessfully to come to grips with their depression, drug use, sexuality, poverty, lack of work, lack of ambition and their complex feelings about each other in ways that have made Megg and Mogg sensations on Hanselmann’s Girl-Mountain Tumblr. Features all of the "classic" Megg and Mogg episodes from the past five years as well as over 70 pages of all-new material.

More Helpful Advice from Robot Hugs
Transcript below:


You’re taking INSULIN? My friend took that and it totally made him so crazy, he stopped sleeping and got all paranoid and thought meercats were trying to kill him and he ended up TRYING TO EAT HIS OWN FACE and it was really bad. Anyways, he decided to stop all his medication cold turkey without medical supervision and got like 100% better, it pretty much cured him, so if you have diabetes it’s probably actually caused by your drugs.

I think we’re FAR TOO DEPENDANT on medications. Asthma attacks are manufactured by big pharma, they’re just trying to tell you you’re sick so they can get your money. It’s all just a scam, you know?

I don’t know… how do you know where YOU start and the DRUGS end? If I had to take pills everyday just to feel normal I’d worry that they were changing who I was. I think I’d rather just not take the antiepilepsy medication and deal with the seizures than risk changing who I was!

An Epipen? Oh goodness, you might as well be taking POISON! Here, I have this all natural homeopathic remedy that will cure that pesky anaphylaxis, you’ll feel right as rain in no time!

More Helpful Advice from Robot Hugs

Transcript below:

You’re taking INSULIN? My friend took that and it totally made him so crazy, he stopped sleeping and got all paranoid and thought meercats were trying to kill him and he ended up TRYING TO EAT HIS OWN FACE and it was really bad. Anyways, he decided to stop all his medication cold turkey without medical supervision and got like 100% better, it pretty much cured him, so if you have diabetes it’s probably actually caused by your drugs.

I think we’re FAR TOO DEPENDANT on medications. Asthma attacks are manufactured by big pharma, they’re just trying to tell you you’re sick so they can get your money. It’s all just a scam, you know?

I don’t know… how do you know where YOU start and the DRUGS end? If I had to take pills everyday just to feel normal I’d worry that they were changing who I was. I think I’d rather just not take the antiepilepsy medication and deal with the seizures than risk changing who I was!

An Epipen? Oh goodness, you might as well be taking POISON! Here, I have this all natural homeopathic remedy that will cure that pesky anaphylaxis, you’ll feel right as rain in no time!

spoonie-living:

radically-disabled:

spoonie-living:

I have a really exciting Spoonie Living announcement for y’all! When I started on my 6-month medical leave from work, one of my goals was to create a zine for new spoonies, to help them hit the ground running as they begin their chronic illness experience. I’m calling it Chronically Badass, and it’s finally done!
Here’s what I cover inside:
Spoon theory
Getting answers
Working with doctors
Work & school
Friends & family
Reactions
Mental health
Coping strategies
Online communities
Mobility
It’s free for download right here (although you’re welcome to donate if you like), so be sure to check it out!
Please also reblog and spread the word so others can find and benefit from this zine.

Is there any way to get this without a credit card? I’d love to read it, but not sure how to get it without having a card.

Gosh, absolutely! If you set the amount to $0, the credit card thing will disappear—give it a shot :)

Just read this and loved it!

spoonie-living:

radically-disabled:

spoonie-living:

I have a really exciting Spoonie Living announcement for y’all! When I started on my 6-month medical leave from work, one of my goals was to create a zine for new spoonies, to help them hit the ground running as they begin their chronic illness experience. I’m calling it Chronically Badass, and it’s finally done!

Here’s what I cover inside:

  • Spoon theory
  • Getting answers
  • Working with doctors
  • Work & school
  • Friends & family
  • Reactions
  • Mental health
  • Coping strategies
  • Online communities
  • Mobility

It’s free for download right here (although you’re welcome to donate if you like), so be sure to check it out!

Please also reblog and spread the word so others can find and benefit from this zine.

Is there any way to get this without a credit card? I’d love to read it, but not sure how to get it without having a card.

Gosh, absolutely! If you set the amount to $0, the credit card thing will disappear—give it a shot :)

Just read this and loved it!